Thursday, October 29, 2009

Help for JJ - from my sister

I just wanted to pass on an opportunity to help for anyone that is interested. I have told some of you about JJ. He is Jen Todd's sister's son. He was born with the liver out of his body in like a bubble or sac. They were unable to fix it until this summer, when he was able to go to Seattle and have it put back inside. He has recently turned three, and you can imagine how hard it has been for them to keep him from falling on or hurting his tummy for the last 3 years. Amy has had to stay home with him, and has been unable to work because he needs constant care. He can not go to a sitter or day care because his immune system is horrible and an cold or flu usually puts him into the hospital, not to mention the typical wrestling of a child could kill him because of the placement of his liver. They really struggled to get enough money to do the 1st surgery, but thanks to many friends and family they were able to raise the funds to go and have the procedure done. They went to Seattle and thought that their nightmare would be over. Unfortunately they found out that they would still need another surgery. JJ's has hernias that were not able to be fixed then, but need to be now. The hernias mean that he has a hole in the abdominal wall that causes his intestines to fall out into his scrotum, making it about the size of a small grapefruit.. as you can imagine, this is very painful for him. Since the surgery his liver is still protruding alot in his belly since they couldnt close the muscle wall all the way around it.. every day he has constant tummy aches and has not been able to gain ANY weight since the surgery, but now they need to check things out and decide if maybe he needs a permanent feeding tube surgically placed. They are supposed to go up to Seattle in November for the surgery, however they are having a hard time raising the funds to get there and get it done. They were at first denied Medicaid, but after an appeal Medicaid agreed to pay part of it. As you can imagine, this kind of surgery is an expensive ordeal. Poor Amy has said that she is so humiliated to have to beg for help, but that for the sake of her child she will do whatever it takes to make him well. I can not imagine how hard it must be. I have been so blessed to always be able to take care of my family, and then have support in times of need. She must come up with the rest of the money by the end of the month (yes- the end of this week) or the hospital will postpone it until next spring when the flu season is over. If you want to read some more about JJ or look at the pictures (found at the bottom of his blog) his blog is . Amy was thinking about starting a business before he was born, and had invested in some materials to make bows and watch bands. She is so tired of just asking for help that she would like encourage people to donate and she will send them one of the items, or you can buy some from her ( I think her bows are really cute).

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